This song was written and sung by Matt Hammitt, lead singer for the Christian group - Sanctus Real. His son Bowen was born with Hypoplastic Left Heart Syndrome (a severe congenital heart defect) and they faced very similar cirumstances post open-heart surgery as us. This song perfectly describes my feelings three years ago, as well as today.
http://www.youtube.com/watch?v=7vF4tc9QREY
(I couldn't get the video to load, so you have to click on the link.)
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